Friday, November 23, 2012
Make a Difference... United WE Stand!
I am writing this message as a way to take a stand and make a difference. My name is Tracy Newman, and I have suffered for the past 30 years with a debilitating, and extremely painful skin disease called Hidradenitis Suppurativa (HS). It is estimated that only 1% of the world population suffers from this condition
Therefore, there has been very little research to help find a cure. We need people to unite and make a stand together. One voice cannot be heard, but the voice of many can make a difference.
My boyfriend, who is a web designer, has graciously taken it upon himself to help with this cause. He has set up a Facebook page (www.facebook.com/HidradenitisSupportive), a Facebook support group (www.facebook.com/groups/HidradenitisSupportive/), a Twitter account (twitter.com/Hidradenitissup), and a website (www.hidradenitissupportive.com).
Some of you are friends, some of you are family, and some of you are fellow sufferers. I ask all of you to please join in this cause... Like the Facebook page, join the Facebook support group, follow the Twitter, visit the website, sign the petition (located on the website). The website is going to be a contantly changing, updated site, so visit every week or so to look for new info or content. For those of you who have already joined us, THANK YOU!!
I know many of you are not personally affected by HS, but someone you know IS. Help make a difference! United WE stand. The only true enemy here is apathy. I thank you for your support!
Tracy Newman
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Apathy IS the enemy.
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